This is my ongoing blog to document the haematopoietic stem cell transplant for the treatment of my illness, Chronic Inflammatory Demyellineating Polyneuropathy (CIDP). I was looked after by Dr Richard K Burt at Northwestern Memorial Hospital under an FDA approved clinical trial in June 2013.
Sunday, 28 July 2013
Last night was quite difficult as I had developed severe pain in my hands and lower arms
I usually ride out the pain, but this time it was too intense so I called the nurse for Tylenol. This kicked in after half an hour and I slept well
I woke with more energy, and started the hotel booking process for my anticipated discharge by the end of the week
On another note, my weight had dramatically increased last week due to the IV steroid pre-meds. I topped out at 61kg.
Vineetha has a paranoia of being heavier than me, and the 61kg gave her adequate 'headroom' to eat whatever she liked. So it was "Maybe I'll have a steak, or a burger or perhaps some dessert"
Unfortunately for her, my weight has dropped this week as fast as it was put on.
The next thing I know, she has visited The Protein Bar and bought a pot of chilli for me (not a regular size, but an all American sized one). She walks into the room and says "EAT!!!"
I managed about two-thirds of it, so she had to finish the rest.
Next, she bought two Kit Kats, and again said "EAT!"
I had one immediately, and thought I'd have the other one after my nap.
But when I woke up, she confessed she had eaten it
My wife's cunning plan had backfired, and now she is terrified of seeing a weighing scale
So after having stoked the fire of my wife's weight paranoia, I had a restful night's sleep ....