This is my ongoing blog to document the haematopoietic stem cell transplant for the treatment of my illness, Chronic Inflammatory Demyellineating Polyneuropathy (CIDP). I was looked after by Dr Richard K Burt at Northwestern Memorial Hospital under an FDA approved clinical trial in June 2013.
Friday, 2 August 2013
I need to thank all of you who have read my posts and given such encouragement
over the last 8 weeks.
So what happens now?
I have made arrangements to fly on 4 August, as the
girls only return from New York on 3 August
We will be home on Monday and I have eight blood
tests scheduled until October so that my condition can be monitored by Dr Burt
Most of my medication will cease after that, except
for an antiviral tablet which I need for 12 months
Most important is the physical therapy which I must
work at to rebuild the muscle as my nerves regenerate.
The next 12 months will be very exciting for me,
and I look forward to the subtle changes that are already happening each day